ME - What it IS…

  • Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness
  • Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS,
  • Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction
  • Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection prominent.
  • Most frequently follows an acute prodromal infection, varying from upper respiratory infections, bronchitis or sinusitis, or gastroenteritis, or an acute “flu-like” illness.
  • Before acquiring ME most patients were healthy, leading full and active lifestyles.
  • Reaction to physical and mental activity and sensory input is unique to ME.
  • Over-exertion can make ME worse and the effects are often delayed and may not be seen within 24 hours.
  • Symptoms can range from mild to very severe and can include:
  • Cardiac and Cardiovascular Problems
    • Cognitive Dysfunction
    • Gastro-intestinal Problems
    • Headaches
    • Hormonal Imbalance
    • Immunological Problems
    • Muscle Weakness and Intense Pain
    • Neurological Problems
    • Sleep Problems
read more

What Needs To Be Done?

The last decades have seen no major investment into correct research into myalgic encephalomyelitis.
Instead an approach to research has been taken which, despite objections from the patient community, has largely funded flawed psychiatric research about the disease.

Adequate funding must be directed to biomedical research and new knowledge from other disciplines such as virology, immunology , endocrinology etc has to be brought in to help research into ME.

What Are We Doing?

Invest in ME Research has produced a strategy of answers to the major problems and we are attempting as best we can to effect the necessary change.

The following documents are recent statements from the charity on major issues.

Debate January 2019

Some of the issues relating to the UK parliamentary debate on 24th January 2019 with also included a one page summary of recommendations

Status of ME 2018

A status of ME document produced by the charity for the parliamentary meeting in 2018 that led up to the 2019 parliamentary debate in UK

NICE Commentary

Comments on NICE guidelines reviews and previous correspondence between the charity and directors of NICE guidelines development

Invest in ME Research (IiMER) was set up with the objective of making a change in how ME was perceived and treated in the media, by health departments and by healthcare professionals. We concentrate on three key areas to concentrate our efforts on - funding for biomedical research, education and lobbying. Our aim is to find, fund and facilitate biomedical research into ME.

Invest in ME Research have been working to establish an international strategy of biomedical research into ME and a UK and European Centre of Excellence for biomedical research into ME.
Help us make ME an illness which is properly understood and where high-quality biomedical research into ME is performed allowing treatments and cures to be found.

Use Our Website


Our research strategy and the research funded by the charity


Information and articles about ME


Our annual international Colloquiums/Conferences


Details of our fundraising activities and how to help us

Let's Do It For ME

Patient-driven campaign to raise awareness and vital funds for research into ME

About Us

More information about the charity


Current and archived news from the charity

Centre of Excellence for ME

Our proposal for a UK Centre of Excellence for ME


Useful educational aids for ME awareness

European Collaboration

Founder member of the European ME Alliance (EMEA) – working together across Europe

Recent/Upcoming Events

Organised by Invest in ME Research
The third workshop organised for young / early careeer researchers organised with the European ME Research Group Early Career Researcher network. This will take place on 2nd June 2023 More details here.
#BRMEC12 - our twelth international Biomedical Research into ME Colloquium - will take place over two days on 31 May - 1 June 2023. More details here.
#IIMEC15 - Our fifteenth international ME conference will take place on 2 June 2023 at the Wellcome Genome Campus near Cambridge. More details here.
#EMERG23 - A full in person meeting for the European ME Research Group (EMERG) will take place on 30 May at Hincton Hall on the Wellcome Genome Campus near Cambridge, UK. More details here.

A Centre of Excellence for ME

Building a solid foundation for future biomedical research into ME

"....with the other expertise and facilities located at the Norwich Research Park, puts it in a very good position to lead a UK and European Centre of Excellence for biomedical research for M.E. to provide possible prevention and solutions."

- Professor Ian Charles Director of Institute of Food Research and Head of Quadram Institute

European ME Alliance (EMEA)

Invest in ME Research is a founder member of the European ME Alliance (EMEA)

The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis and are campaigning for funding for biomedical research to provide treatments and cures for ME.

Last Update September 2018

Latest Tweets

© Copyright Invest in ME Research. All Rights Reserved. Let's Let's Do Research Research