Building a Future for Research into ME IIMEC4


IIMEC4 London, May 2009

The 4th International ME/CFS Conference 2009 took place on 29th May 2009 in London and was attended by presenters and delegates from 14 countries and four continents.

The focus of the conference for 2009 was Severe ME, an attempt to raise more awareness of a group of patients who are not represented in research trials and misunderstood by healthcare services. Many believe that studying severe ME will have provide better opportunities to yield treatments and cures for this disease and have repercussions for other services including management of ME.

Following the successful IiME International ME/CFS conference in London in May 2008 which dealt with Sub Grouping and Treatments of ME/CFS the 2009 conference also looked at the subjects of the ME Clinic -

  • diagnosis of ME/CFS

  • diagnosis of ME/CFS

  • treatments for ME/CFS

  • epidemics of ME/CFS

  • news from the latest biomedical research into ME/CFS

The conference was robustly chaired by Professor Jonathan Brostoff whose knowledge of the area was used frequently in the question sessions.

Past IiME Conferences

IIMEC4 2009 was our fourth annual international conference for ME. The conference regularly attracts clinicians, researchers, healthcare staff, charities, support groups and patients and carers fromtwenty countries around the world.
This allows unique networking opportunities and increase the potential for one of the charity's main objectives - international collaboration between researchers.


IIMEC4 Conference Agenda 2009

Lecture Theatre Birdcage Walk

Conference Report

It was our pleasure to welcome Hillary Johnson as our guest in London for the Invest in ME pre-conference. Her presentation was on CDC's influence on ME Research Throughout the World.
The presentation was impressive and shocking, telling some of the inside story of how ME has been manipulated by a government agency.
This had so many parallels to the concerted campaign to misinform which had occurred in the UK over the years. Hillary's presentation will be available on our 2009 conference DVD but she has also added it to her web site - http://oslersweb.com.

The conference version of the Journal of IiME conatined all of the abstracts for the conference - [http://www.investinme.org/InfoCentre - Journal of IiME.htm].

The Whittemore-Peterson Institute for Neuro-immune Diseases was represented with Annette Whittemore giving the conference keynote speech.

Dr Dan Peterson gave a comprehensive lecture based on his 25 years of clinical experience and the solid research using being performed at the WPI. This was followed by a presentation showing the dynamics and power of science by the WPI's research director Dr Judy Mikovits.
We looked forward to seeing this important work being published and validated.

Professor Garth Nicolson gave a very good overall lecture on the role of chronic infections and complex illnesses. His presentation was full of information to show the difficulties researchers and clinicians are faced with when meeting this group of patients.

Professor Nyland based his lecture on two recent epidemics in Norway. This has given researchers there a chance to do follow up studies on the patients who have remained ill with ME like illness. One outbreak was due to Giardia parasite and the other due to Legionella bacterium.

Dr Baumgarten showed us what can be done with public funds when politicians are supportive and patients' voice is being listened to. The importance of defining the patient base carefully using the Canadian consensus document was made clear and she confirmed the inadequacies of the NICE guidelines for diagnosis.

Dr Kerr had replicated and expanded on his previous gene expression work and he showed us his usual high quality research. His team has looked at various infections linked with ME/CFS (EBV, parvovirus, enterovirus, coxiella burnettii and chlamydia pneumoniae) and found among other things that the late phase marker for EBV ( nuclear antigen IGG) varied among patients compared to normal controls with patients having lesser levels. Dr Kerr and his team have also looked at the possibility of developing a SNP (single nucleotide polymorphism) based test for the genomic subtypes.

Dr Chia showed us his excellent, solid research on enteroviruses which is confirming previous work done in the UK. He is concentrating his efforts in finding antiviral therapy against enteroviruses. He has found Oxymatrine to be beneficial for about 53% of his patients.

Professor De Meirleir preceded his conference presentation with a press conference in London on the day before (May 28, 2009) entitled 'ME: End of an Era of Medical Negation' unveiling his findings from recent research which has included examining many patients in Norway and displayed conclusions regarding the complex mechanisms of ME/CFS pathogenesis, a diagnostic test, and directions for therapeutic strategies.

A separate study by Professor De Meirleir et al. has been published In Vivo, http://bit.ly/fqKF5. Here they observed intestinal overgrowth of Gram positive D/L lactate-producing bacteria which are also known to produce H2S [hydrogen sulphide] in presence of certain heavy metals as a survival defence mechanism.

Also present at the conference was Marian Dix Lemle who is a science writer and has published a hypothesis on hydrogen sulphide and CFS which can be found here http://linkinghub.elsevier.com/retrieve/pii/S0306-9877(08)00391-5

The progress being made in biomedical research into ME, despite the lack of adequate funding by national organisations, such as the UK Medical Research Council or the US CDC, again demonstrated that there is absolutely no value in attempting to join biomedical researchers with those who advocate the psychosocial view of ME (as advocated by the MRC and cynically implied by NICE).

Invest in ME published its Journal of IiME [click here] at the conference and abstracts of the conference presenters' presentations are included therein.


Conference DVD

IIMEC4 Conference DVD

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£14


The DVD contains 4 discs and is in PAL format- containing the full presentations from the 2009 conference plus plenary sessions, and the pre-conference dinner speech by Hillary Johnson.

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DVD Details

Format: PAL
Length 400 minutes
Contents Full presentations from conference plus pre-conference dinner speech


The views expressed at the Invest in ME International ME Conference conferences by the presenters and delegates to the conference and any information material distributed are their own personal opinions that are not necessarily shared or endorsed by the Trustees of Invest in ME/Invest in ME Research.

Invest in ME/Invest in ME Research accept no responsibility for the views expressed or any subsequent action taken. The contents of any presentation should not be deemed to be an endorsement, recommendation or approval of such content by Invest in ME/Invest in ME Research. The materials presented at the 1st Invest in ME International ME Conference 2006 do not constitute medical advice. No medical recommendations are given or implied by Invest in ME/Invest in ME Research. Any person registering or attending an Invest in ME/Invest in ME Research conference, or purchasing the DVD, who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner. Invest in ME/Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained at the conference.

By purchasing any of the conference DVDs you agree that Invest in ME/Invest in ME Research is not liable for any complications, injuries, loss or other medical problems arising from, or in connection with, the use of or reliance upon any information contained in the conference.


IIMEC4 GALLERY

Images from IIMEC4, London, 2009


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PAST INVEST in ME INTERNATIONAL ME CONFERENCES

More details of previous Invest in ME conferences can be found on the current IIMEC* conference overview page - Click here.


Our Sponsors for IIMEC4

Invest in ME wish to thank the following organisations for helping to sponsor the 3rd Invest in ME International ME Conference 2008.


The Irish ME Trust

The Irish ME Trust have sponsored a speaker at all of our conferences and we would like to thank them for their continued support.

The Alison Hunter Memorial Foundation

The Alison Hunter Memorial Foundation of Australia has agreed to sponsor the Invest in ME International ME/CFS Conference 2009 by providing funds for the production of the DVD. This will enable IiME to provide another CPD-accredited conference on DVD to those around the world who would wish to be present at the conference but cannot.

Invest in ME wish to thank the AHMF for this supremely generous offer - an offer which allows us to achieve another of the objectives of the conference. The AHMF is an inspirational and enduring memorial to Alison Hunter and all those whose lives have been devastated by ME/CFS. Read more click here.




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If you have any questions regarding the conference then please contact us by email and we will get back to you as soon as possible.
Thank you for your interest in the charity.


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  • Address: Invest in ME Research
    PO Box 561 Eastleigh SO50 0GQ Hampshire, UK
  • Phone: 02380 643736 / 07759 349743
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Invest in ME Research Activity - Mainstreaming Research into ME


The charity does not only arrange and host research Colloquiums and Conferences.

Use our website references in the links below to view other work performed by Invest in ME Research.




Research

IIMER are facilitating a strategy of biomedical research into ME. The charity is currently funding possibly important research projects for ME in the UK with international collaboration.
Currently the main hub of research is at Quadram Institute Bioscience and University of East Anglia ) in the Norwich Research Park and we also fund research at UCL. These involve a gut microbiota project in Norwich and B cell research in London.

Advisory Board

The IIMER Advisory Board is made up of eminent researchers who are helping the charity to form a credible and productive biomedical research strategy which will provide the best and quickest route for possible treatments and cures for this disease.

Centre of Excellence for ME

Translational biomedical research - an iterative feedback of information between the basic and clinical research domains in order to accelerate knowledge translation from lab to bedside and back to lab again - allows translation of findings in basic research more quickly and efficiently into medical practice to produce more meaningful health outcomes and facilitate the sharing of repositories and research-based facilities and laboratories. This is the model IiMER are attempting to promote in the proposal for an examination and research facility based in Norwich.


Let's Do It For ME

Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK centre of excellence for translational biomedical ME research, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.

Research Colloquiums

In addition to the International ME Conference the charity also organises an annual International Research Colloquium which attracts researchers from around the world in order to discuss experiences and open up collaborations in order to find answers for this disease.

European Collaboration

Invest in ME Research is one of the founder members of the European ME Alliance (EMEA) – a grouping of charities and patient organisations working together across Europe. Now fifteen European countries collaborating.


Invest in ME Research

We welcome support to enable us to build and sustain a strategy of high-quality biomedical research into ME.

To support our work in developing a Centre for ME research please see this link.




Last Update 12/06/2016

  

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  • Address: PO Box 561 Eastleigh Hampshire SO50 0GQ

  • Phone: 02380 643736 / 07759 349743

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