News from Invest in ME Research
General New/Conference News/Research News/Charity News
Oct 2021: The PACE Trial Debacle Articles
In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield researchRead More
Sep 2021: NICE and transparency
A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.Read More
Aug 2021: Letter to NICE from Invest in ME Research
A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for MERead More
March 2021: EMEA News A Roundtable of European Stakeholders and Policymakers
Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.Read More
September 2019: Update Meeting on IiMER Research Activities
IiMER are arranging a public meeting in Norwich during Norwich Science Festival Week to publicise some of the initiatives occurring.Read More
Mar 2019: IiMER Sponsoring NIH Thinking the Future Lunch
Invest in ME Research created the Thinking the Future network to encourage young and early career researchers into ME.
We are taking it further as we work with USA National Institues of Health.
Jan 2019: IiMER Establish European ME Clinicians Council (EMECC)
Invest in ME Research has arranged an inaugural meeting of leading European clinicians who are involved in treating people with Myalgic Encephalomyelitis. EMECC will play a role in Colloquium and Conference.Read More
The SMILE Trial and Its Not-So-Happy Aftermath
Now in its eighth year we wish to introduce another level to the Biomedical Research into ME Colloquium in 2018.
Solve ME/CFS has announced the award of a grant for research at the Centre of Excellence for ME.
The award allows continuation and expansion of the work started by Invest in ME Research funded researchers and complements ongoing research at the Centre.
IiMER funded PhD students Katharine and Fiona recently visited Berlin to present about ME.
On #InternationalMEAwarenessDay and for the UK Centre of Excellence for ME we have now raised £188,000 in total for past, current and planned projects relating to gut microbiota, and other research being developed at the UK Centre of Excellence for ME.
For ELEVEN years Invest in ME Research has been organising international biomedical research conferences in Westminster, London. Our choice of venue for #IIMEC12 reflects our commitment to patients, families, carers, researchers and healthcare staff.
Among the amazing efforts being made by supporters to raise funds for the UK Centre of Excellence for ME and for the biomedical research
being carried out and planned - is this from Mike Harley.
Mike is running 28 European marathons in five years - supporting our five year plan to develop the Centre of Excellence and carry out the UK rituximab trial.
Mike's efforts are described in the link below -"Running 28 European Marathons - in the name of Friendship"
The new book on ME by Dr Ian Gibson and Elaine Sherrifs is going through its final proof-readings.
Norwich based Ian Gibson is former MP for Norwich North, former dean of biology at the University of East Anglia and was chair of the science and technology select committee from 2001-2005.
Dr Øystein Fluge from the Haukeland University Hospital in Bergen, Norway will be giving a public presentation on his team's research. The meeting will be in Norwich on 26th January 2017.
Today we reach a landmark day in our B-cell/rituximab research project where the total in donations and pledges has reached £1/2 million.
The Haukeland University Hospital team of Dr Oystein Fluge and Professor Olav Mella Team will visit the Norwich Centre as the collaboration between centres continues.
We are pleased to announce that the charity has been successful with its Big Lottery Awards for All grant to help promote the Centre of Excellence for ME.
Daniel L. Peterson Medicine Doktor, Simmaron Research, Sierra Internal Medicine, Incline Village, NV USA.
A Role for the Intestinal Microbiota and Virome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)?
Ahead of our upcoming 11th International ME Conference we have a short update here about progress with the project.
We recently met with IFR/UEA researchers to discuss progress of the gut microbiota project.
PhD student Daniel Vipond and Dr Navena Navaneetharaja have been busy collecting samples from severely ill house bound patients - sometimes getting up at 2am! to set out on their journeys on some days. They have sampled 11 severely ill patients so far which is an admirable result as these patients are not easy to access and they have only been collecting these samples for a relatively short time.
Two new PhD students will start in September/October in Norwich Research Park.
One is funded by IiME and another one is a self-funding student who wishes to be part of the research and who is experienced in laboratory work. This student was specifically interested in participating in the ME research which has been started at UEA/IFR.
This underlines our strategy of creating the Centre of Excellence for ME.
A third student position funded by IiME is being advertised later in the summer. Invest in ME are also aiming to keep the MedRes studentships going as these have turned out to be very successful in many ways. These highly motivated medical students are not only very helpful for the research projects but they also become better ME educated doctors as well as influencing their student peers.
Some even stay involved in ME research!
The continuing work and atmosphere at NRP is very encouraging.
Professor Tom Wileman will discuss the project at our forthcoming IIMEC11 International ME Conference on 3rd June in London.
NIVEL study: CBT - This Recommended Treatment of ME/CFS is Often Detrimental to ME Patients
The PhD and intercalating medical students involved in the IiME funded UK gut microbiota research participated in a panel session at the recent 10th International ME Conference in London on 29th May.
Bharat Harbham, Daniel Vipond and Navena Navaenanarathrama answered questions from the audience about their research and their impressions of ME.
Prof. Simon Carding, Leader of the Gut Health and Food Safety Research Programme, Institute of Food Research and Norwich Medical School at the University of East Anglia, was interviewed by BBC journalist Susie Fowler-Watt and describes the project which Invest in ME is funding.
The initial target was to raise £100,000 for the foundation project and begin a research strategy which we could build on and initiate other
biomedical research projects which will benefit patients and augment an international database of valid data.
Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK centre of excellence for translational biomedical ME research, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.