June 2022: Déjà vu?
An announcement from the Secretary of State for Health on ME - some observations
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April 2022: Fundraising for IiMER
Some of the efforts being made by supporters during recent months.
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March 2022: Marathon Man - Challenge Completed
Mike Harley has entered the final stage of his marathon adventure - supporting the charity and people with ME
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March 2022: EMEA webinar roundtable II 8 April 2022 - ME/CFS in Europe
A virtual roundtable organised by the European ME Alliance and the European Federation of Neurological Alliances has been arranged for 8 April 2022 - to discuss issues, educate and find solutions.
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March 2022: Another Great Biomedical Research Colloquium
The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic and the situation in Europe.
However, the agenda is filling up with new ideas and news of research from around the world.
This year a theme throught the Colloquium is -
ME and Long Covid: Emerging insights in mechanisms and complexity of post-viral fatigue.
Once again the European ME Research Group (EMERG) will be leading the agenda.
Dec 2021: Christmas Appeal
Our Christmas Appeal and Advent Calendar for 2021 - Happy Christmas
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Oct 2021: NICE Guidelines Published
NICE has finally published the updated guidelines for ME after over two months of unnecessary delays - taking us forward to 2007.
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Oct 2021: The PACE Trial Debacle Articles
In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield research
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Oct 2021: Paper from Dr Ernie Hsieh et al - part of Quadram team
Comparison of PCR versus PCR-Free DNA Library Preparation for Characterising the Human Faecal Virome
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Sep 2021: Legitimising the Omnishambles II
A reply from the NICE CEO to IiMER's letters - and IiMER's response
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Sep 2021: Guidelines by Stealth
Nobody should legitimise further manipulation of guidelines for ME.
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Sep 2021: Time to Step Away?
It is time for people with ME to step away from this recent shambles of a process - unless everything can become open and transparent and accessible to all.
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Sep 2021: NICE and transparency
A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.
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Aug 2021: NICE Guidelines Development Debacle - And So It Continues
Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.
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Aug 2021: Fourteen Years
It has been fourteen years since NICE guidelines were published. A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.
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Aug 2021: Letter to NICE from Invest in ME Research
A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME
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July 2021: EMEA Webinar Roundtable video now available
EMEA has published the video of the recent webinar roundtable meeting with all presentations from the event.
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July 2021: Royal Parks Half Marathon
Places available in the 2021 Royal Parks Half Marathon.
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July 2021: IiMER Supporters Win £1,000
IiMER Supporters Win £1,000 in Movement for Good Award
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April 2021: RESTORE-ME Clinical Trial Update
The RESTORE-ME clinical Trial Manager has supplied a brief update.
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March 2021: EMEA News A Roundtable of European Stakeholders and Policymakers
Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
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March 2021: EMEA News Pan-European Survey
EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.
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February 2021: Another Great Biomedical Research Colloquium
The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic
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February 2021: COVID-19 and Conference Week
Announcement on International ME Conference Week events and COVID-19 Pandemic in 2021
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Dec 2020: IiMER Response to NICE Draft Guidelines
Invest in ME Research assessed the NICE Draft Guidelines published in November 2020
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Dec 2020: NICE Accede to IiMER Request
Persistence Pays - NICE Accede to IiMER Request to Add Addendum to Guidelines - Sort Of
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Dec 2020: IiMER Christmas Fund Appeal
IiMER Christmas Fund Appeal - Help us raise awareness and funds for research into ME
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November 2020: Request to NICE to remove GET
The charity has repeated its request to NICE to remove GET as a recommendation immeidately
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November 2020: NICE Draft Updated Guidelines
The charity responds to the NICE press release regarding new draft guidelines
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September 2020: International ME Conference Week 2021
The charity announces details for International ME Conference Week 2021 in London
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Jul 2020: More on Funding Award for Research into ME
More on the award for Biomedical Research into ME in Norwich Research Park
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Jul 2020: Press Release: Major Award for Research into ME
UK Charity Awards Funding for Research into ME in Norwich Research Park
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June 2020: IiMER Supporters Win £1,000
IiMER Supporters Win £1,000 in Movement for Good Award
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June 2020: European Research Development
European Research Development to make progress in ME
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March 2020: Developing European Clinical Expertise for ME
An intent to develop further the European infrastructure for ME
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February 2020: News of new Clinicians Workshop
An International Clinicians Workshop is a new event to improve clinical knowledge.
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Jan 2020: ME Public Engagement Event - Norwich February 2020
Invest in ME Research and The Quadram Institute are arranging a Public Engagement Event in Norwich
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