Invest in ME Research "Ian Gibson" Fellowship
Invest in ME Research Ian Gibson" Fellowship - in memory of scientist, politician, advocate and good friend of people with ME, Dr Ian Gibson
Library
A library of articles produced by Invest in ME Research addressing developments in politics, policymaking, research and the media, alongside key charity initiatives.
Diagnosis: Criteria aiding clinicians, patients and policymakers in accurate identification
Research: Biomedical findings, epidemics, viruses and IiMER-funded updates for researchers and funders
Politics and Policy: NICE, MRC, NHS and Department of Health materials informing policy and professional practice
Advocacy: Statistics, UKCRC input and campaigning documents for public awareness and parliamentary engagement
Browse By Category
2022: IiMER-funded Research Update
Completion of the 4th IiMER-funded PhD
2023: Invest in ME Research "LunaNova" Fellowship
Quadram Institute and Invest in ME Research Announce New Research Fellowship for Myalgic Encephalomyelitis
2022: Overview of UKCRC Interaction
Submissions and Comments from Invest in ME Research
2022: Exec.Summary & UKCRC
Centre of Excellence for ME Executive Summary Document Update 2022
2022: Déjà vu?
Early initial comment on DHSC Delivery Plan Project
2021: NICE Commentary
Submissions and Comments from Invest in ME Research
2022: PACE Trial Overview
PACE TRIAL Position and Comments from Invest in ME Research
2021: Paper from Dr Ernie Hsieh et al
IiMER-funded research at Quadram Institute
2021: NICE FOURTEEN YEARS
Review Statement from IiMERrch of NICE Updated Guideline
2021: Legitimising the Omnishambles II
NICE Guidelines: Legitimising the Omnishambles II - A reminder of the story so far
2020: Letters to Dr Paul Chrisp at NICE
IiMER Request for Removal of GET from NICE Guidelines
2019: Query to UK CMOs
Replies from a Question to the Chief Medical Officers
2018: Listen to the Patients
Accountability and Action II - Norway
2019: Parliament Debate
The Debate Is Over - Inaction for ME Is Not An Option: GIVE ME PATIENTS A FUTURE
2018: Saga of Ineptitude
NICE Guidelines Development: A Continuing Saga of Ineptitude
2018: Cochrane Review
Cochrane Review - Accountability and Action III
2018: Status of ME
Status of Research, Treatment and Perception of Myalgic Encephalomyelitis 2018 Accountability and Action
2018: PACE Trial Debate
Parliamentary Debate on PACE Trial February 2018
2018: Anne Örtegren Farewell to a friend
Farewell - A Last Post from Anne Örtegren Swedish advocate and patient and friend
2018: Letters to Prof. Mark Baker at NICE
Correspondence with Professor Mark Baker - Centre for Guidelines Director, National Institute for Health and Care Excellence
2018: IiMER to Scottish parliament
IiMER statement to Scottish Parliament and info on IiMER's work in Scotland
2017: SMILE Trial Staement
The SMILE Trial and Its Not-So-Happy Aftermath A statement from Invest in ME Research
2017: SMILE Trial
IiMER Response to NICE 10 year surveillance (2017) – myalgic encephalomyelitis
2017: Treading Water in the Media
BBC Radio 4 Programme on ME
2017: Cause and Effect
Highlighting the Scandal of Past Treatment of ME - Cause and Effect
2017: Meeting with CMO
Invest in ME Research Visit The CMO of England's Office
2017: BPS Note Sheet
Notes on the Ineffectiveness of the Biopsychosocial Model for Treating Myalgic Encephalomyelitis
2017: Media & Research
A Breakthrough in Awareness - Integrity in Media and Research
2017: Purinergic Signalling
Purinergic Signalling and CNS Disorders
2016: Influences on Research
The Fog of ME Politics - And The Years Pass By
2016: Friendly Fire?
Invest in ME Research Statement November 2016 - Friendly Fire? The Fog of ME Politics
2016: Omega Petition
OMEGA Counter Petition to MEGA Project
2016: The Wrong Stuff
Flawed Research from a Flawed Approach - A False Approach to Research into ME
2015: IOM Report
IiMER RESPONSE TO INSTITUTE OF MEDICINE DOCUMENT Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
2015: P2P Report
IiMER SUBMISSION TO NIH PATHWAYS TO PREVENTION WORKSHOP - TIME FOR BOLD ACTION
2015: PACE-Time to Retract
THE PACE TRIAL - A Time for Reflection - A Time for Retraction
2015: Orthostatic Intolerance
Pathophysiology in ME: Orthostatic Intolerance
2015: Orthostatic Intolerance
BLOOD VOLUME in ME
2015: IiME Letter to TIMES
INVEST IN ME Letter to The TIMES
2015: IIME Response to BBC ARTICLE
INVEST IN ME Letter to The TIMES
2014: Letter from America
Letter from America - ME/CFS Manifesto - by Llewellyn King
2014: A Mother Cares for 3 Children with ME
A Mother Cares for 3 Children with ME
2014: Karina - En dansk tragedie
En dansk tragedie - Karina Hansen
2014: True Battle with CFS
THE TRUE BATTLE WITH CHRONIC FATIGUE SYNDROME
2013: Sensationalism versus Science?
A response to the Sunday Times Magazine article by Michael Hanlon - from Malcolm Hooper and Margaret Williams
2013: FINE TRIALS
Experiences of the FINE Trials
2013: The Right Stuff
The Right Stuff
2013: Tale of 2 Collaboratives
Tale of 2 Collaboratives - more repetition of what we have already done
2013: Meeting with Dr McShane
Meeting with Dr McShane
2013: Severe ME
Severe ME
2013: ME/CFS PITUITARY AWARENESS
ME/CFS PITUITARY AWARENESS
2013: PACE Trial Recovery Rates
PACE Trial Recovery Rates
2012: Guidelines for ME
Guidelines for ME
2011: Defending Indefensible
Defending the Indefensible? by Margaret Williams
2011: “Grey” Info on ME I
“Grey” Information about ME/CFS Part I
2011: “Grey” Info on ME II
“Grey” Info on ME II
2011: “Grey” Info on ME III
“Grey” Info on ME III
2011: Cardiopulmonary Test
Using Cardiopulmonary Exercise Testing to Evaluate Fatigue and Post-Exertional Malaise in ME/CFS
PACE: Concern
PACE Trial: An expression of concern
2011: A Question of Integrity
The Role of Establishment Media in ME
2011:Blood Products Advisory Committee Meeting Transcript
Blood Products Advisory Committee Meeting Transcript Dr Harvey Alter’s Closing Remark at the Conference
2011: The ME Dilemna
THE MYALGIC ENCEPHALOMYELITIS DILEMMA
2010: The NAME
THE Name - MYALGIC ENCEPHALOMYELITIS DILEMMA
UK position on ME
Evidence that the official UK position is that ME/CFS (or CFS/ME) is a neurological disorder
2010:Human Enteroviruses
Human Enteroviruses
2010: SMILE Study
SMILE Study
2010: GMC on ME
GMC on ME
2009: Concern about CBT/GET
Concern about CBT/GET
2009: Concern over CBT/GET
Concern over CBT/GET
2009: CBT, GET and Human Rights
CBT, GET and Human Rights
2009: CBT/GET - Ineffective
CBT/GET - Ineffective
2009: Is PACE Trial justified
Is PACE Trial justified ?
Wheelchair Attitudes
Wheelchair Attitudes
2008: Who Gets ME and Why
Who Gets ME and Why
2011: CFS after Q Fever
Chronic Fatigue Syndrome after Q fever
2009: Interstitial cystitis & ME
Interstitial Cystitis and Chronic Fatigue Syndrome
2009: Inflammation in ME
More evidence of inflammation in (ME)CFS
2009: Viruses in ME/CFS
Documented involvement of Viruses in ME/CFS
2009: MRC Secret Files
Secret Files on ME/CFS
2010:25 years of Barts CFS
Twenty-five years of the Barts Fatigue Service
2010: MUS & ME
Reasons why ME Does Not Belong to the MUS Category…and So Forth
2009: ME Treatment Detrimental
NIVEL study: CBT - This Recommended Treatment of ME/CFS is Often Detrimental to ME Patients
2015:Caring for Seriously Ill
Caring for seriously ill ME-patients: A small survey
2009: Dr Lerner's EIP Scale
Energy Index Point Score™ Chart - A Functional Capacity Measurement Tool For Chronic Fatigue Syndrome (CFS) Patients
2009: Mitochondrial Disease
ME/CFS as a Mitochondrial Disease
2008: Essential investigations
Essential investigations for people with ME/CFS?
2007: Exploratory Subgroups
Exploratory Subgrouping in CFS: Infectious, Inflammatory, and Other
2015: Exercise intolerance
The physiology of exercise intolerance in patients with myalgic encephalomyelitis (ME) and the utility of graded exercise therapy
2009: CBT, GET And Human Rights:
CBT, GET And Human Rights:
2007: CBT, GET Human Rights
Stats on DLA & IB 2007
2007: Status of ME 2007-CMO
A Review of the Status as at January 2007 - Recommendations from the CMO's Working Group of 2002*
2006: Epidemics of ME
Epidemics of ME A Review of The Clinical Syndrome Variously Called Benign Myalgic Encephalomyelitis, Iceland Disease and Epidemic Neuromyasthenia
2006: Vaccination, Antibiotics
VACCINES, ANTIBIOTICS and ME
2006: Hyde's ME Definition
The Nightingale, Myalgic Encephalomyelitis (M.E.) Defi nition
2006: IiMEC1 in JCP
Presentations from our International ME Conference in London May 2006 now adapted/published in the Journal of Clinical Pathology
2006: Hyde's Little Red Book
A New and Simple Definition of Myalgic Encephalomyelitis and a New Simple Definition of Chronic Fatigue Syndrome
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2006: Canadian Criteria
Canadian Criteria for diagnosis
2006: Review Benign ME
A Review of The Clinical Syndrome
2006: HHV-6 and ME
HUMAN HERPES VIRUSES 6 - HHV6?
2006: Statistics and ME
Information about the article “Statistics and ME” by Professor Malcolm Hooper