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To enable correct diagnosis then a standard set of diagnostic guidelines needs to be in place.
If the definition of the illness is vague (if the name is not agreed upon, the symptoms therefore not agreed, the diagnostic criteria not standardized) then, of course, the diagnosis and the treatment will be liable to be incorrect.
Misdiagnosis is a known problem with ME.
Missed diagnosis is an additional risk once ME is given to a patient - something that only increases in risk the longer a patient is left to their own devices in managing the disease.
The lack of a common set of guidelines has also allowed too much flawed research to be funded thus wasting valuable time and money.
This has been a major obstacle in obtaining progress for people with ME and has allowed far too many cases of missed or misdiagnosis to occur.
The damage being done to ME patients in UK is clearly evident to our charity – primarily because healthcare services still treat the disease as a somatoform illness, despite the official UK government recognition of ME as a chronic neurological disease this then gives rise to misdiagnosis and maltreatment - as pointed out to the health secretary.