Invest in ME Research
Christmas/New Year Fund Appeal Advent Calendar


A Simple Question



Invest in ME Research has frequently contacted the Chief Medical Officer of England over the years that the charity has been in existence.

Often these have been associated with requests to attend our international conferences – conveniently located just a couple of hundred meters from the CMO’s office.

Last year we arranged for a meeting with all CMOs of the UK in London. All agreed – and in the end we met with the Deputy CMO of England who was apparently covering all UK bases.

A list of points was arranged to be discussed [1].

And nothing happened.

Day 3 of our Christmas / New Year Fund Appeal Advent Calendar concerns the function of the UK Chief Medical Officers.

However, rather than send in another request, another list of points, we decided instead to do things differently.

In this United Kingdom (which appears less and less united as the years go by) we put one simple question to the CMOs of the UK – something which they could easily answer.

We allowed them to address, via Invest in ME Research, the ME community – the patients, the families, the carers, the friends, as well as the wider public.

Day 3 of our Advent Calendar – One Simple Question

CMO England

One Simple Question


CMO Northern Ireland

One Simple Question


CMO Scotland

One Simple Question


CMO Wales

One Simple Question



Below are spaces for the replies from the CMOs of the UK – for if and when they arrive.


CMO England

No Reply




CMO Northern Ireland

Reply from CMO N.I.


CMO Scotland

Thank you for your email.
Unfortunately I cannot trace your earlier
email but I know we had problems with
emails earlier in the month so this
may have not be delivered.
I will bring your email to Catherine’s
attention and run past our policy
colleagues.
We will respond in due course.

CMO Wales

No Reply






In January 2019 the status was that we had received one reply from the CMO of Northern Ireland, a promise to respond by the CMO of Scotland (which never materialised), and no replies from the CMOs of England and Wales.
In the spirit of cooperation we have reached out to the Northern Irish CMO and offered support for their plans to establish a clinical specialist.
With our European ME Alliance colleagues at Hope 4 ME Fibro (H4ME), who have made an offer to fund places at the #IIMEC14 conference, we have made an offer to facilitate networking in London for their newly appointed consultant, if that consultant has the endorsement of H4ME.
We can also look for support and cooperation with other initiatives that are going on.
And the other Chief Medical Officers of the UK? It is all too easy, yet Unacceptable, for establishment entities who are responsible to the public to abrogate their responsibilities.


CMO England
Dear Dame Sally,
The charity has now emailed you three times to ask if you would kindly respond to a question that we posed regarding myalgic encephalomyelitis (ME).
Following the recent parliamentary debate it is quite obvious that change is required.

We would therefore kindly ask you to consider supplying response – even just to acknowledge receipt of this request,

Yours Sincerely,

The Chair and Board of Invest in ME Research




CMO Northern Ireland

Our response to CMO Northern Ireland

CMO Scotland
Dear Dr. Calderwood,

The charity has now emailed you three times to ask if you would kindly respond to a question that we posed regarding myalgic encephalomyelitis (ME).

Over one month ago your office promised to bring this to your attention and to respond.
So far we have received no response.

Following the recent parliamentary debate and the Scottish government debate it is quite obvious that change is required.

We would therefore kindly ask you to consider supplying a response so that ME patients in Scotland, and their families, may understand your position,

Yours Sincerely,

The Chair and Board of Invest in ME Research
CMO Wales
Dear Dr. Atherton,
The charity has now emailed you three times to ask if you would kindly respond to a question that we posed regarding myalgic encephalomyelitis (ME).
Following the recent parliamentary debate it is quite obvious that change is required.

We would therefore kindly ask you to consider supplying a response so that ME patients in Wales, and their families, may understand your position,

Yours Sincerely,

The Chair and Board of Invest in ME Research








Further Reading:


#InvestinMEresearch www.investinme.org

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