Sep 2021: Legitimising the Omnishambles II
A reply from the NICE CEO to IiMER's letters - and IiMER's response
Sep 2021: Guidelines by Stealth
Nobody should legitimise further manipulation of guidelines for ME.
Sep 2021: Time to Step Away?
It is time for people with ME to step away from this recent shambles of a process -
unless everything can become open and transparent and accessible to all.
Sep 2021: NICE and transparency
A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack
of transparency in procedures since pausing the publication of the guidelines.
Aug 2021: NICE Guidelines Development Debacle - And So It Continues
Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.
Aug 2021: Fourteen Years
It has been fourteen years since NICE guidelines were published.
A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.
Aug 2021: Letter to NICE from Invest in ME Research
A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME
July 2021: EMEA Webinar Roundtable video now available
EMEA has published the video of the recent webinar roundtable meeting with all presentations
from the event.
July 2021: Royal Parks Half Marathon
Places available in the 2021 Royal Parks Half Marathon.
July 2021: IiMER Supporters Win £1,000
IiMER Supporters Win £1,000 in Movement for Good Award
May 2021: ME Awareness Month
Awareness of Invest in ME Research Awareness Activities
April 2021: Dr Ian Gibson
Sad news at the passing of Dr Ian Gibson
April 2021: RESTORE-ME Clinical Trial Update
The RESTORE-ME clinical Trial Manager has supplied a brief update.
April 2021: Fundraising for IiMER
Some of the fundraising for April.
April 2021: Support ME Awareness
ME Awareness leaflets for the charity.
March 2021: EMEA News A Roundtable of European Stakeholders and Policymakers
Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
March 2021: EMEA News Pan-European Survey
EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.
February 2021: Another Great Biomedical Research Colloquium
The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic
February 2021: iiMER Research
Research blog: Update on IiMER-funded Research
February 2021: COVID-19 and Conference Week
Announcement on International ME Conference Week events and COVID-19 Pandemic in 2021
January 2021: Anne Örtegren
Remembering Anne Örtegren
Last Update February 2021