Myalgic Encephalomyelitis (ME, sometimes referred to as ME/CFS). Benign Myalgic Encephalomyelitis (ME)/Post Viral Fatigue Syndrome (PVFS) is a multisystem, complex, acquired illness with symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME/PVFS had been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases since 1969 (ICD 10 G93.3). This debilitating neurological illness is currently classified by the World Health Organisation under ICD-11 Code: 8.E49. The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis), issued in January 2002 recognises, that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there any specific treatment for this condition. What is ME? What is CFS? Guidelines for ME IiMER Leaflet
Our annual international Conferences and research Colloquiums are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. These are CPD-Accredited events held in UK. A sample of conferences is in our conference trailer below.
click on the topic bars below to expand/contract for more information
NICE has finally published the updated guidelines for ME after over two months of unnecessary delays - taking us forward to 2007.
In case the PACE Trial should rear its ugly head again we have created a page with some of the PACE Trial related articles from years back. The #PACETrial #Nullfield research
Comparison of PCR versus PCR-Free DNA Library Preparation for Characterising the Human Faecal Virome
The passing of Graham McPhee
A reply from the NICE CEO to IiMER's letters - and IiMER's response
Nobody should legitimise further manipulation of guidelines for ME.
It is time for people with ME to step away from this recent shambles of a process - unless everything can become open and transparent and accessible to all.
A further letter has been sent to the NICE CEO from Invest in ME Research - commenting on the lack of transparency in procedures since pausing the publication of the guidelines.
Invest in ME Research Comment on the current landscape from the continuing NICE Guidelines development debacle.
It has been fourteen years since NICE guidelines were published. A review of possible NICE guidelines 2021 developed from the Draft Guidelines 2020.
A letter has been sent to the NICE management from Invest in ME Research following the sudden pause on publishing the final NICE Guidelines for ME
EMEA has published the video of the recent webinar roundtable meeting with all presentations from the event.
2021 Royal Parks Half Marathon
IiMER Supporters Win £1,000 in Movement for Good Award
Awareness of Invest in ME Research Awareness Activities
Sad news at the passing of Dr Ian Gibson
ME Awareness leaflets for the charity.
Following joint planning sessions EMEA and European Federation of Neurological Associations are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
EMEA will perform this survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.
The next BRMEC Colloquium is going virtual due to the COVID-19 Pandemic
Research blog: Update on IiMER-funded Research from Rik Haagman
Remembering Anne Örtegren
