A UK Centre of Excellence for ME
Our Proposal
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Just Text Giving Donate to the Invest in ME Biomedical Research Fund Text IBRF33 £2 / £5 / £10 to 70070 to donate now -
e.g. text the following to 70070
IBRF33 £5
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or
See our JustGiving Pages here - click here
DONATE to the BIOMEDICAL RESEARCH FUND
The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.
Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -
-
Biomedical Research into ME
-
Education Regarding ME
-
Conferences related to ME
-
Expenses in Sponsoring Presenters to Speak at Conferences
-
Cost of sponsoring PhD students performing biomedical research into ME
-
Set up and running of ME Clinic treating severely affected patients with ME
-
Assisting with equipment and other costs of researchers performing purely biomedical research into ME
Currently the focus of the BRF is toward the proposal for a UK examinations and research facility for ME. If you would like to help in raising funds please contact us.
To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.
DONATE to the RITUXIMAB TRIAL PROJECTS
Make a one-off donation via JustGiving
You can use your credit card or PayPal and there is an option to use Gift Aid.
Make a one-off donation via credit card or Paypal
You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.
Other Ways to Contribute to the Rituximab Clinical Trial
To read more about the UK Rituximab Clinical Trial projects and ways to donate please go to the UK Rtiuximab Trial web site click on this this link.
HELP US FUND INVEST in ME RESEARCH CONFERENCES
The Invest in ME International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians for almost 10 years.
The Invest in ME International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers.This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.
To see what has been performed over ten years please go to this link.
Easyfundraising
provides a FREE service where you can shop with your favourite online stores and at no extra cost raise funds for Invest in ME.
You still shop directly with each retailer as you would normally, but simply by using the links from this site first, each purchase you make will generate a cashback donation to Invest in ME.
Click on the image above.
Surf the Web with Every Click
By using Every Click (click here) and making IiMER your charity of your choice then you can earn money for IiME.
This can really make a difference to Invest in ME Research.
This is a really easy way to assist funding of biomedical research.
Make a One-off Donation via Credit Card or Paypal
Make a one-off donation via credit card or Paypal
You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.
Make a Monthly Donation via Credit Card or PayPal
Make a monthly donation via credit card or PayPal
If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.
DONATE Via JustTextGiving Using Yyour Mobile Phone
DONATE Via A CHEQUE
Send a cheque
You can use your credit card or PayPal and there is an option to use Gift Aid.
Please make out your cheque to Invest in ME,
say in the cover letter it's for the Rituximab trial and mail it to:
Invest in ME
PO Box 561
Eastleigh
Hampshire SO50 0GQ
UK
If you are a UK taxpayer, please complete our
Gift Aid form and enclose it with the cheque.
http://www.investinme.org/Documents/Gift%20Aid%20Form%20appendix_b1.pdf
HELP US FUND INVEST in ME RESEARCH CONFERENCES
6/ Via Bank Transfer To make a direct bank to bank transfer of funds then this is the bank account for the IiME UK rituximab trial -
Bank Name | LLOYDS BANK |
Bank Address |
36 Market Street Eastleigh Hampshire SO50 9YT England |
Lloyds Bank Sort code | 30-92-94 |
Account Number | 30061668 |
Account Name | IiME Biomedical Research Fund RITUXIMAB |
Bank’s account number (IBAN) | GB63 Loyd 3092 9402 2526 85 |
BIC/SWIFT number |
BIC: LOYDGB21209 |
Easyfundraising
TRF - The Recycling Factory
E-baY
- Start selling on eBay
- Sign into your eBay account and click "sell" to list an item, just as you normally do.
- Choose to donate
- In the "Pricing & Duration" section of the Sell Your Item form, choose "Donate a percentage of sale to charity" to launch the eBay for Charity feature.
- Select a charity and donation percentage
- Find Invest in ME Research in the MissionFish charity directory.
- Then choose how much of your final sale price (10%-100%) you would like to donate. A £2 minimum donation applies.
- Finish your listing
- Once you select Invest in ME Research as the charity to benefit from your listing, review your listing details and submit it as usual.
Candle House
Size 11.5cm by 17.2 cm

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
All I Want for Christmas
Size 15cm by 15cm

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the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Candles
Size 15cm by 15cm

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Joy

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the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Tealights

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the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Jingle Bells

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Christmas Bauble

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box
Please remember to click on the actual price for your country in the drop-down box
Science, Politics and ME

The book has not yet been published. Please return here at a later date.
International Conference DVDs
Please note:
This is for purchasing conference DVDs for UK delivery.
Please use the relevant option for delivery to Europe or outside Europe.
For more details about each conference please go to the coference website - click here
More details of previous conferences at this link - http://www.investinme.eu/IIMEC12-pastconferences.shtml
CCC Guidelines

Copies of CCC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org
Please note:
We order batches of guidelines depending on requirements.
ICC Guidelines

Copies of ICC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org
Please note:
We order batches of guidelines depending on requirements.
HELP US FUND INVEST in ME RESEARCH CONFERENCES
The Invest in ME Research International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our researchers' 'Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians since 2006.
The Invest in ME Research International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers. This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.
To see what has been performed please go to this link.
HELP US FUND RESEARCH and ADVOCACY
Donating to Invest in ME Research means that the donation will go towards one of a variety of activities which are part of our objective to build a foundation of biomedical research into ME.
IiMER does not pay any salaries so all funds are directed to where they can be used effectively to reach our objectives.
To see what has been performed over more than a decade please go to this link.
DONATE to the BIOMEDICAL RESEARCH FUND
The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.
Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -
-
Biomedical Research into ME
-
Education Regarding ME
-
Conferences related to ME
-
Expenses in Sponsoring Presenters to Speak at Conferences and Colloquiums
-
Cost of sponsoring PhD students and postdocs performing biomedical research into ME
-
Set up and running of ME Clinical services
-
Assisting with equipment and other costs of researchers performing purely biomedical research into ME
Currently the focus of the BRF is mainly toward the research in the Centre of Excellence for ME project. If you would like to help in raising funds please contact us.
To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.
HELP US FUND RESEARCH and ADVOCACY
Donating to Invest in ME Research means that the donation will go towards one of a variety of activities which are part of our objective to build a foundation of biomedical research into ME.
IiMER does not pay any salaries so all funds are directed to where they can be used effectively to reach our objectives.
To see what has been performed over more than a decade please go to this link.
DONATE to the GUT MICROBIOTA PROJECTs
The UK Gut Microbiota Research projects aim to find whether there is evidence of a leaky gut in ME patients, to test the hypothesis that ME is an autoimmune disorder originating in the gut as a consequence of altered intestinal permeability, to investigate whether the underlying causes of ME are related to the presence of specific virus populations within the gut virobiota, and aim to answer important questions concerning the role of the enteric phage/virome in ME .
These are research projects in the developing UK Centre of Excellence for ME.
To read more about the UK Gut Microbiota projects please go to this link.
DONATE for CENTRE of EXCELLENCE for ME
The Centre of Excellence for ME is a project proposed by Invest in ME Research to establish a hub for biomedical research into ME. Please support us
This link takes one to the C of E for ME site please go to this link.
DONATE for MEDICAL STUDENTS in RESEARCH into ME
The Centre of Excellence for ME is a project created by Invest in ME Research. Part of this project proposal is the inclusion of medical students who will intercalate during their fourth year of study and participate in the biomedical research.
To read more about the medical students in ME please go to this link.
Background
People with ME need early and correct diagnosis, proper treatment and advice.
The status of services for people with ME and their families in the UK has been poor with little knowledge
of biomedical research being applied.
Simplistic and ineffectual psychological therapies are offered in place of real treatments - wasting public money and doing nothing to help patients.
This has resulted in ME patients having no real healthcare service and far too little progress being made in attracting new researchers or clinicians to study the disease.
The dangers for people with ME in having no proper clinical examination and no access to continuous care is that the disease can develop into more severe forms with significant loss of functioning.
There is also the danger of mis- or missed diagnosis - a common problem with people thought to suffer from ME.
The USA Food & Drugs Agency (FDA) recently decided to re-categorise ME in "Immune Diseases - describing it as "SERIOUS and LIFE THREATENING", on a par with cancer or /heart failure (click here) and the UK government recognise ME as a chronic neurological illness.
To download our poster please click here
History

Invest in ME Research has been attempting to change this situation by annual international research
colloquiums and public conferences.
The charity has also been funding and facilitating biomedical research into ME and the training of medical students.
The charity's' proposal for a Centre of Excellence for ME was first made in 2010 after members of the charity had sat in meetings with the NHS for several years - but these meetings produced very little progress in improving things for people with ME.
With the support of our advisor, Dr Ian Gibson , the charity reached agreement with the Norfolk PCT to fund proper diagnosis and extensive examinations for Norfolk patients provided asuitable consultant could be found. Though the government's healthcare reforms removed that possibility Invest in ME have been continuing to work towards helping to establish an examination and research facility for ME in Norwich, Norfolk, UK, utilising the knowledge, expertise and facilities within and around the Norwich Research Park - which includes the University of East Anglia, the Quadram Institute (formerly Institute of Food Research), Earlham Institute (formerly TGAC) and the Norfolk and Norwich University Hospital.
With the help of the Let's Do It For ME campaign our foundation research project was funded and established in Norwich Research Park with UEA/Quadram Institute.
In 2012 the charity announced its intention to facilitate and fund a clinical trial of rituximab for ME patients. This led to further research on B-cells which allowed a preliminary study to be established and performed.
In 2020 the charity signed a contract with the Quadram Institute for a project that will perform a clinical trial using FMT within Norwich Research Park, in collaboration with university, university hospital and local ME clinic.
- 2020 - Funding Award for Clinical Trial
- 2019 - News from Norwich - Conference Announcements
- 2017 - Professor Ian Charles Opens IIMEC12
- 2016 - IIMER Big Lottery Award
- 2015 - Professor Ian Charles Opens IIMEC10
- 2014 - Rituximab Trial
- 2013 - Foundation Project
- 2012 - Let'sDo It For ME
- 2011 - Agreement with PCT
- 2010 - CofE proposal created
The Centre of Excellence for ME Elements
With the objective of improving and promoting education about ME amongst healthcare staff and raising awareness of the disease the charity feels that the best way to make progress is to establish a national centre of excellence for ME.
To this end we have established momentum by implementing research projects and synergising resources to build the foundations of a research base which can develop into a UK Centre of Excellence for Biomedical Research into ME.
The charity believes that a change needs to be made in the way service provision for ME patients is carried out and is suggesting a simple but effective structure for providing services and instituting major biomedical research into this disease which will have profound effects on the way ME is treated in the UK and establish a hub of scientific and clinical excellence for ME within Europe.
The Centre of Excellence is now a distinct and attainable objective - harnessing the benefits of collaborative
biomedical research
in modern facilities with worldclass researchers.
Our aim is to establish a world-class, sustainable examination and research centre which would form the hub
of European research and treatment for this disease and produce a pathway to produce huge benefits for the nation
and across the world.
Read More
THE RESEARCH
With the help of leading researchers the charity is proposing a number of initial projects which would help establish a research base and lead to further projects being initiated based on findings.
It is not often realised that 60-70% of the immune system is located in the gut as a vast network of lymph tissue referred to as GALT (gut associated lymphatic tissue). The research highlighted in the proposal involves looking at gut microbiota, which is the latest thinking in how to go about research. In USA, renowned pathogen hunter Dr. Ian Lipkin and specialist clinician Dr. Nancy Klimas have suggested a similar approach.
There are also a number of new ideas being developed and collaboration between researchers at universities in UK and Europe and USA is underway thanks to the initiatives of the charity and researchers.
The aim is to build on this but the research has to start somewhere and so the researchers have begun afresh with the best approach. This research proposal is to build a strategy of biomedical research which would involve patients, clinicians and researchers working together.
A foundation project at the University of East Anglia began in 2013 - funded by Invest in ME Research. More details are available at this link.
Further projects are underway in Norwich Research Park - more details here.
The charity had been keen to replicate the Norwegian
findings (click here) using Rituximab.
We initiated B-cell research at UCL which would have led to a UK rituximab clinical trial.
Dr Oystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, visited Norwich in January 2017
to collaborate with the researchers from University of East Anglia/Quadram Institute Biosience/University College London/Oxford University
- details here.
The Norwegian Phase III rituximab trial proved negative inthe end but useful research and collaborations
have resulted.
More details of this are here.
We have continued to fund a PhD project at UCL - click here.
Our strategy also includes European and international collaboration.
The charity has spent many years attempting to cultivate
international collaboration with research into ME. We have initiated and facilitated the formation of the European ME Research Group (EMERG) as a way
of fast tracking European research - more details here.
Our anual research colloquiums are also aimed at increasing collaboration and regularly attract delegates from 14 countries - more details here.
A recent initiative has been to create the European ME Clinicians Council in order to create a network of experienced clinicians who can share
knowledge regarding treatments and research and create common standards - click here for more information.
We welcome support to help us build a Centre of Excellence for ME.
The Benefits
- Early and correct diagnosis of ME
- A clinical lead consultant would assess and plan the development of future services in conjunction with commissioning CCGs
- It would provide access to specialist assessment, diagnosis and advice on the clinical management, including symptom control and specific interventions, for both patients and health professionals
- Eventual provision of an ambulatory service and/or tele-medical services for those severely ill patients who cannot be moved
- development of a network of local multi-agency domiciliary services to support people who are more severely affected and who are unable to access hospital and primary care services
- allow ME/CFS patients (including those severely affected) to participate in clinical trials, where novel research will be conducted, and where medical students can learn about this disease.
- facilitate training and education opportunities for healthcare staff to enhance their knowledge and skills in the diagnosis and management of ME
- lead the development of services within primary and secondary care and support GPs and other health professionals in the care of patients with ME.
- Healthcare staff would feel more comfortable with the diagnosis of ME being made
- Undertake comprehensive assessments and provide a care package for each patient to include carer and family support
- Savings on existing consultant referrals and staff by concentrating ME examination in one area
The benefits of this approach will, we are sure, save lives and could help restore or improve the lives of hundreds of thousands of patients and their families.
Our Centre of Excellence Fund
HELP US FUND INVEST in ME RESEARCH CONFERENCES
The Invest in ME Research International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our researchers' 'Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians since 2006.
The Invest in ME Research International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers. This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.
To see what has been performed please go to this link.
HELP US FUND RESEARCH and ADVOCACY
Donating to Invest in ME Research means that the donation will go towards one of a variety of activities which are part of our objective to build a foundation of biomedical research into ME.
IiMER does not pay any salaries so all funds are directed to where they can be used effectively to reach our objectives.
To see what has been performed over more than a decade please go to this link.
DONATE to the BIOMEDICAL RESEARCH FUND
The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.
Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -
-
Biomedical Research into ME
-
Education Regarding ME
-
Conferences related to ME
-
Expenses in Sponsoring Presenters to Speak at Conferences and Colloquiums
-
Cost of sponsoring PhD students and postdocs performing biomedical research into ME
-
Set up and running of ME Clinical services
-
Assisting with equipment and other costs of researchers performing purely biomedical research into ME
Currently the focus of the BRF is mainly toward the research in the Centre of Excellence for ME project. If you would like to help in raising funds please contact us.
To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.
HELP US FUND RESEARCH and ADVOCACY
Donating to Invest in ME Research means that the donation will go towards one of a variety of activities which are part of our objective to build a foundation of biomedical research into ME.
IiMER does not pay any salaries so all funds are directed to where they can be used effectively to reach our objectives.
To see what has been performed over more than a decade please go to this link.
DONATE to the GUT MICROBIOTA PROJECTs
The UK Gut Microbiota Research projects aim to find whether there is evidence of a leaky gut in ME patients, to test the hypothesis that ME is an autoimmune disorder originating in the gut as a consequence of altered intestinal permeability, to investigate whether the underlying causes of ME are related to the presence of specific virus populations within the gut virobiota, and aim to answer important questions concerning the role of the enteric phage/virome in ME .
These are research projects in the developing UK Centre of Excellence for ME.
To read more about the UK Gut Microbiota projects please go to this link.
DONATE for CENTRE of EXCELLENCE for ME
The Centre of Excellence for ME is a project proposed by Invest in ME Research to establish a hub for biomedical research into ME. Please support us
This link takes one to the C of E for ME site please go to this link.
DONATE for MEDICAL STUDENTS in RESEARCH into ME
The Centre of Excellence for ME is a project created by Invest in ME Research. Part of this project proposal is the inclusion of medical students who will intercalate during their fourth year of study and participate in the biomedical research.
To read more about the medical students in ME please go to this link.
THE FUTURE
Invest in ME Research and our supporters have been facilitating research collaboration between individuals and organisations and have funded UK research.
The charity's success in arranging FIFTEEN annual international biomedical research conferences and TEN international biomedical research colloquiums demonstrates its determination and coomitment to find a cause or causes for this devastating disease.
IiMER has European connections and links to other researchers and institutes in Europe and Australia and USA.
The foundations are therefore already in place to advance science and provide the promise of better treatment and possible restoration of function and lives back to a section of the community who have received very little help in the past.
Please help us to find the cause of this disease and develop effective treatments to permit patients to regain their lives.
Please help support our Centre of Excellence Fund - click here
Other ways to donate are available via this link
Click on the links below for FAQs regarding for ME and the research.
FAQs
Executive Summary for MPs and Others
Current News Items
Date | Item | Source |
---|---|---|
Feb21: | Another Great Research Colloquium | IiMER |
Feb21: | IiMER-funded Research | IiMER |
Feb21: | COVID-19 and Conference Week | IiMER |
Feb21: | Royal Parks Half Marathon | IiMER |
Jan21: | Remembering Anne Örtegren | IiMER |
Dec20: | IiMER Response to NICE Draft Guidelines | IiMER |
Dec20: | Request to NICE from IiMER Successful | IiMER |
Dec20: | IiMER Christmas Fund Appeal | IiMER |
Dec20: | #GivingTuesday | IiMER |
Nov20: | Request to NICE to remove GET | IiMER |
Nov20: | NICE Draft Guidelines PR | IiMER |