Donations Update for CofE B-cell/Rituximab Research
Mainstreaming Fasttracking Research into ME
A new update to our B-cell/rituximab projects being funded at UCL which brings the total raised so far for projects there to £503,000.
We are now funding future phases of the work to develop further the Centre of Excellence for ME approach which currently has 5 PhDs working on research into ME plus students involved.
Our dedicated microsite for that project with more details is available here.
Please join our CofEforME support campaign - click here
Our mascot, Professor Ldifme, was created by our supporters and indicates the B-cell/rituximab total - posters by LDIFME's Jan Laverick.
Ways to help us are shown in the column at the right of our page.
Do not forget our public lectures in Norwich on 26th January 2017.
Dr Øystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be giving a public lecture on the ground-breaking research using rituximab to treat ME.
Professor Simon Carding of University of East Anglia/Institute of Food Research will also be speaking. Professor Carding is leading a team of ME researchers in Norwich.
The lectures will take place at The Assembly House, Norwich beginning at 18.30 - more details here
Our current funding targets and status are shown here -
Helping Fund Our Work
Below are ways to help the charity fund the research and the work that is carried out.
Centre of Excellence
Funding of research and studentships to develop a Centre of Excellence for ME in Norwich Research Park
For the biomedical research fund to fund new research projects at the Centre or connected
For education of medical students,bursaries for young/ECR researchers and clinical fellowships for GPs
Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.
Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.
Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.
The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.
The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.
We are a small charity but with supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.
We have links nationwide and also internationally.
Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.
The charity was also responsible for initiating the European ME Research Group (EMERG) concept, a collaboration of European researchers from major institutes.
The charity also has initiated the European ME Clinicians Council (EMECC), a network of European clinicians who will work together and share experiences of treating ME in order to establish better standards for patient care.
We do not receive, and have never received funding from government or government organisations.
We believe that we need a national strategy of biomedical research into ME to produce treatments and cures for this illness.
We have always believed that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for biomedical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.
However, the charity does not believe in merely asking for funding - the charity has pursued of policy of raising funds itself for biomedical research in order to fund research at top UK institutes. More information is available here.
We believe that clinicians should standardise on usage of the most up-to-date criteria (currently we emphasise the Canadian Criteria) for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).
The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Bioscience/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.
Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.
In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.
Our aim is to fund and facilitate research in order to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness
Our efforts are focused on setting up a UK/European Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s).