Collaboration Between Haukeland and UK Centres
UK Rituximab Trial Update
We are pleased to announce that Dr Øystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be visiting the Norwich Centre to continue and extend the collaboration between IiMER-funded researchers as the plans for the UK rituximab trial develop.
Already the IiMER funded researchers have been collaborating with Dr Fluge and Professor Mella and the team in Bergen - with Dr Jo Cambridge and Fane Mensah both having visited Norway as part of their continued collaboration to study the potential role of B cells in ME and they continue this collaboration.
IiMER also funded our advisor, Professor Jo Edwards as the first to visit Bergen back in the autumn of 2013.
This close collaboration benefits all researchers involved and is greatly appreciated.
Establishing biomedical research into ME and arranging clinical trials is not, and has not been easy. Invest in ME Research have been working tirelessly for many years attempting to foster, encourage, find, facilitate and eventually fund high-quality biomedical research which is built on a strategy which will lead to an understanding of the aetiology of this disease and the development of treatments.
Our strategy is also founded on international collaboration - of the right stuff.
This development is a further example of that strategy taking effect.
If you would like to donate to our research funds then links are available on the right of this page.
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We will have more information soon.
Helping to Fund Our Work
Below are ways to help the charity fund the research and the work that is carried out.
Our aim is to develop and sustain high-quality biomedical research into ME within a Centre of Excellence hub and with European collaboration with other European institutes. This will lead to fundamental science being performed leading to multi-site clinical trials, improvement in standards and data analysis, the development of treatments, improvement of diagnosis and a more informed view of this disease amongst the media and the public.
Additionally, this strategy will improve education amongst clinicians and encourage more researchers to become involved in this disease.
Centre of Excellence
Funding of research and studentships to develop a Centre of Excellence for ME in Norwich Research Park
For the biomedical research fund to fund new research projects at the Centre or connected
For education of medical students,bursaries for young/ECR researchers and clinical fellowships for GPs
Invest in ME Research is an independent UK charity finding, facilitating, and funding a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), and promoting better education about ME.
The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.
The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.
Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.
Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.
We are a small charity but with supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.
We have links nationwide and also internationally.
Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.
The charity was also responsible for initiating the European ME Research Group (EMERG) concept, a collaboration of European researchers from major institutes.
The charity also has initiated the European ME Clinicians Council (EMECC), a network of European clinicians who will work together and share experiences of treating ME in order to establish better standards for patient care.
We do not receive, and have never received funding from government or government organisations.
The seriousness and urgency of the situation regarding ME makes it necessary for a charity such as Invest in ME Research to provide the impetus for funding biomedical research in order to provide hope for the development of diagnostic tests and remedial treatments.
The charity has pursued of policy of raising funds itself for biomedical research in order to fund research at top UK institutes. More information is available here.
We believe that clinicians should standardise on usage of the most up-to-date criteria which will be agreed and developed for diagnosis by the European ME Clinicians Council and European ME Research Group, along with international collaborators. in order that there is an agreed basis (noting that evolutionary improvement would be welcomed).
The charity organises an annual research Colloquium and conference regularly attracting delegates from 20 countries and funds research at the Quadram Institute and the University of East Anglia as well as influencing collaboration elsewhere, in UK, Europe and beyond.
Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.
In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.
Our aim is to fund and facilitate research in order to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness
Our efforts are focused on setting up a UK/European Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s).
Last Update 12/11/2016