Invest in ME ResearchChristmas/New Year Fund Appeal Advent Calendar
Media and ME - Soundbite Healthcare
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Media is intended to reach and address a large target group or audience.
The word was first used in respect of books and newspapers i.e. print media and with the advent of technology,
media now encompasses television, movies, radio and internet.
In today’s world, media becomes as essential as our daily needs.""
Media of today is playing an outstanding role in creating and shaping of public opinion and strengthening of society.”
“Media is the sword arm of democracy. Media acts as watchdog to protect public interest against malpractice and create public awareness.”
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Invest in ME Research Statement
17 December 2018
The Institute of Psychiatry, Psychology and Neuroscience, King’s College London, study by Russell et al.
“Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of chronic fatigue syndrome” has been much hyped by the press to show
the first time ever that CFS involves an overactive immune response.
Invest in ME Research are not quite as excited about the study as the media attempts would prefer as fatigue induced by interferon-alpha is well known.
Although the study did show that psychosocial risk factors did not play a role in persistent fatigue
it does not challenge the model put out by the biopsychosocial (BPS) school of thought that CFS is maintained by behavioural and lifestyle factors
that can be amended by a short course of CBT and GET.
The study used the so called Oxford criteria to select the CFS cohort.
These discredited criteria only require prolonged unexplained fatigue as a requirement and not the hallmark post-exertional malaise (PEM) as in other more stringent ME/CFS criteria.
The study also used the discredited Chalder Fatigue score that is problematic as it cannot measure deterioration if the starting point is low.
We were also surprised from the sociodemographic table to see 62% of the CFS cohort had history of depression and 70.6% had family history (first degree) of mental illness.
This seems very high
and makes us question the type of patients that attended the CFS specialist recruitment clinics at the South London and Maudsley (SLaM)
and the Royal Free NHS Foundation Trusts.
Usually studies on ME/CFS patients have reported good mental health scores despite low physical functioning scores so the demographic features of
this King’s College study seem at odds with other ME/CFS studies/cohorts.
This research may be of use for fatigue research - but people with ME and their families would like to see public funding being spent on well-defined ME patients for a change.
The Media and ME
The SMILE Trial and Its Not-So-Happy Aftermath
Reinvention - The Cycle of Research into ME in the UK
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