References

A list of references for all documentation on the Invest in ME Research web site.

  • 2 “Is chronic fatigue syndrome a neurological condition? A survey of UK neurologists,”

    5. W. Wojcik, D. Armstrong, and R. Kanaan, “Is chronic fatigue syndrome a neurological condition? A survey of UK neurologists,” Journal of Psychosomatic Research, vol. 70, no. 6, pp. 573–574, 2011. http://www.jpsychores.com/article/S0022-3999(11)00057-2/abstract

  • 4 Remit of the Chief Medical Officer

    Remit of the Chief Medical Officer

  • 5 - Chief Medical Officer’s Report of 2002

    A Report of the CFS/ME Working Group - Report to the Chief Medical Officer of an Independent Working Group https://www.investinme.org/Documents/CMO/CMO report 2002.pdf

  • 6 Flaws in BPS Theory for ME

  • 11 Remarks by Professor Mark Baker of NICE

    Remarks by Professor Mark Baker of NICE regarding the value of the NICE guidelines for ME https://www.investinme.org/IIMER-Newslet-1801-01.shtml#IiMER-reply18-2

  • 17 Sophia Mirza

    Sophia Mirza https://www.investinme.org/Article-050%20Sophia%20Mirza%2001.shtml https://www.investinme.org/Article-050%20Sophia%20Mirza%2001.shtml

  • 18 Visit to CMO

    https://www.investinme.org/IIME-Newslet-1701-01.shtml https://www.investinme.org/IIME-Newslet-1701-01.shtml

  • 23 Chronic Fatigue Syndrome:Written question - 146298

    Chronic Fatigue Syndrome:Written question - 146298
    To ask the Secretary of State for Health and Social Care, how much funding from the public purse was allocated to biomedical research into myalgic encephalomyelitis in 2011-2012. https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-05-21/146298/

  • 25 Gibson Inquiry Report

    The report from the Gibson Inquiry of 2006 http://www.erythos.com/gibsonenquiry/docs/me_inquiry_report.pdf

  • 26 Letter to IiMER Regarding NICE Guidelines

    Letter to IiMER

  • 27 USA Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum

    USA Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum to the 2014 ME/CFS evidence review and downgraded CBT and GET. https://www.ncbi.nlm.nih.gov/books/NBK379582/

  • 28 Chronic Fatigue Syndrome:Written question - 146298

    Chronic Fatigue Syndrome:Written question - 146298
    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-05-21/146298/

  • 30 Response to Institute of Medicine

    Invest in ME Research Response to Institute of Medicine “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness” Report https://www.investinme.org/Documents/IOM%20Contract/Invest%20in%20ME%20Response%20to%20INSTITUTE%20of%20MEDICINE%20Beyond%20ME-CFS%20Redefining%20an%20Illness.pdf

  • 31 PACE Trial

    The PACE Trial Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. Lancet 377: 823–836. doi: 10.1016/s0140-6736(11)60096-2 https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60096-2/abstract

  • 32 David Tuller articles on PACE Trial

    David Tuller articles on PACE Trial
    References for David Tuller
    • Undark http://undark.org/article/chronic-fatigue-graded-exercise-pace/
    • Undark Podcast http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/
    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (second installment)
    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (final installment)
    • PACE trial investigators respond to David Tuller http://www.virology.ws/2015/10/30/pace-trial-investigators-respond-to-david-tuller/
    David Tuller responds to the PACE investigators
    Trial By Error, Continued: Did the PACE Study Really Adopt a ‘Strict Criterion’ for Recovery?
    Trial By Error, Continued: Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?
    Trial by error, Continued: PACE Team’s Work for Insurance Companies Is “Not Related” to PACE. Really?
    Revisiting the PLoS One economics analysis of PACE
    Trial By Error, Continued: Questions for Dr. White and his PACE Colleagues
    Trial By Error, Continued: Did the PACE Trial Really Prove that Graded Exercise Is Safe? (with Julie Rehmeyer)
    • Trial By Error, Continued: More Nonsense from The Lancet Psychiatry http://www.virology.ws/2016/01/19/trial-by-error-continued-more-nonsense-from-the-lancet-psychiatry/
    • Trial By Error, Continued: A Few Words About “Harassment” http://www.virology.ws/2016/02/01/trial-by-error-continued-a-few-words-about-harassment/
    • Trial By Error, Continued: My Questions for Lancet Editor Richard Horton http://www.virology.ws/2016/09/01/trial-by-error-continued-my-questions-for-lancet-editor-richard-horton/
    Trial By Error, Continued: The Real Data

  • 35 A preliminary analysis of ‘recovery’ from chronic fatigue syndrome in the PACE trial

    A preliminary analysis of ‘recovery’ from chronic fatigue syndrome in the PACE trial using individual participant data http://www.virology.ws/wp-content/uploads/2016/09/preliminary-analysis.pdf http://www.virology.ws/wp-content/uploads/2016/09/preliminary-analysis.pdf

  • 36 Reanalysis of PACE Trial results by Matthees et al

    A preliminary analysis of ‘recovery’ from chronic fatigue syndrome in the PACE trial using individual participant data reference http://www.virology.ws/wp-content/uploads/2016/09/preliminary-analysis.pdf

  • 37 CDC has updated their website about ME/CFS to use the 2015 Institute of Medicine report

    The CDC has updated their website about ME/CFS to use the 2015 Institute of Medicine report and has removed Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) from its recommendations https://www.cdc.gov/me-cfs/about/index.html

  • 40 What is ME? What is CFS? INFORMATION FOR CLINICIANS AND LAWYERS

    What is ME? What is CFS? INFORMATION FOR CLINICIANS AND LAWYERS url reference

  • 43 Shakespeare, Tom, Watson N. and Alghaib O.A. (2016) Blaming the victim, all over again: Waddell and Aylward’s biophyschosocial (BPS) model of disability in Critical Social Policy 2016, Vol 36:4 (1-20)

    Shakespeare, Tom, Watson N. and Alghaib O.A. (2016) Blaming the victim, all over again: Waddell and Aylward’s biophyschosocial (BPS) model of disability in Critical Social Policy 2016, Vol 36:4 (1-20) http://journals.sagepub.com/doi/abs/10.1177/0261018316649120

  • 44 Finland’s Valvira removes recommendation for use of CBT and GET

    Finland’s Valvira removes recommendation for use of CBT and GET https://www.investinme.org/IIMER-Newslet-1709-02.shtml https://www.investinme.org/IIMER-Newslet-1709-02.shtml

  • 45 AGREE Instrument

    AGREE Instrument (Appraisal of Guidelines Research and Evaluation Instrument https://www.agreetrust.org/ https://www.agreetrust.org/


  • Use Our Website

    Research

    Our research strategy and the research funded by the charity

    Information

    Information and articles about ME

    Conferences

    Our annual international Colloquiums/Conferences

    Fundraising

    Details of our fundraising activities and how to help us

    Let's Do It For ME

    Patient-driven campaign to raise awareness and vital funds for research into ME

    About Us

    More information about the charity

    News

    Current and archived news from the charity

    Centre of Excellence for ME

    Our proposal for a UK Centre of Excellence for ME

    Education

    Useful educational aids for ME awareness

    European Collaboration

    Founder member of the European ME Alliance (EMEA) – working together across Europe

    Recent/Upcoming Events

    Organised by Invest in ME Research
    The inaugural conference bringing together international clinicians treating ME in London that was due to be held on 17 May 2022. Due to the pandemic and related reasons this is being rescheduled.  More details to follow. Click here.
    #BRMEC11 - our eleventh international Biomedical Research into ME Colloquium - took place on 18 - 19 May 2022. More details here.