Due to the consequences of the Covid-19 pandemic Invest in ME Research was forcd to move the planned 2020 International ME Conference Week events in London to the end of May 2021. More details at this link
This article was originally made for the 2020 conference but has now been amended to relate to the 2021 event.
ME Conference Week - A
2020 2021 Vison for ME - Developing European Clinical Expertise for ME
We feel this is best enacted via collaborations between knowledgeable clinicians
ME patients - sharing knowledge and integrating clinical expertise with a research strategy that closes the loop for translational biomedical research.
It is one of the reasons why the charity initiated the European ME Clinicians Council (EMECC).
As mentioned before with the re-formation of EMERG then we have a bridge in Europe between clinicians and biomedical researchers and use the expertise from knowledgeable clinicians to influence research.
Our BRMEC10 Colloquium will have clinicians discussing with researchers to improve the quality of ideas for both sets of prefessionals.
The Quadram Institute is putting this into practice also at its major new facility in Norwich Research Park, which is where the RESTORE-ME clinical trial will take place.
Another of the ideas from the last EMECC workshop in London was to form a European group of therapists - attached to EMECC - that could consist of occupational therapists, physiotherapists and nurses as they often are an essential part of a clinical team.
Forming such a European group makes a lot of sense to us as part of the European infrastructure set up that we are trying to establish.
So in the forthcoming International ME Clinicians Worksop we are looking at inviting OTs, Physios and nurses as participants as a start in initiating this group.
This will not only improve the situation for patients it will also facilitate the building of the infrastructure to treat and research ME.