Invest in ME Research
Christmas/New Year Fund Appeal Advent Calendar
In medicine, healthcare, technology and science the last forty years have seen some spectacular developments.
Antibiotics dramatically reduced death rates due to infection and today even new classes of antibiotics are being produced – even synthesised versions – to tackle superbugs.
Organ transplants have become commonplace - with thousands of transplants being performed every year. Artificial organs have been developed.
Vaccinations developed against many infectious diseases have changed society.
Imaging technology such as CT, MRI, PET has revolutionised the detection of disease.
Anti-TB therapy practically eradicated tuberculosis, until recently.
Major advances in knowledge of the genetic code has laid foundations for the -omics branches of science.
Kidney dialysis, endoscopy and laparoscopic surgery, inhaled therapy, cataract treatment, statins, beta-blockers....ec., etc.
Revolutionary developments now in everyday use, improving lives of patients.
Technologies too have changed the world
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Organ transplants have become commonplace - with thousands of transplants being performed every year. Artificial organs have been developed.
Vaccinations developed against many infectious diseases have changed society.
Imaging technology such as CT, MRI, PET has revolutionised the detection of disease.
Anti-TB therapy practically eradicated tuberculosis, until recently.
Major advances in knowledge of the genetic code has laid foundations for the -omics branches of science.
Kidney dialysis, endoscopy and laparoscopic surgery, inhaled therapy, cataract treatment, statins, beta-blockers....ec., etc.
Revolutionary developments now in everyday use, improving lives of patients.
Technologies too have changed the world
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Imaging technology such as CT, MRI, PET has revolutionised the detection of disease.
Anti-TB therapy practically eradicated tuberculosis, until recently.
Major advances in knowledge of the genetic code has laid foundations for the -omics branches of science.
Kidney dialysis, endoscopy and laparoscopic surgery, inhaled therapy, cataract treatment, statins, beta-blockers....ec., etc.
Revolutionary developments now in everyday use, improving lives of patients.
Technologies too have changed the world
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Major advances in knowledge of the genetic code has laid foundations for the -omics branches of science.
Kidney dialysis, endoscopy and laparoscopic surgery, inhaled therapy, cataract treatment, statins, beta-blockers....ec., etc.
Revolutionary developments now in everyday use, improving lives of patients.
Technologies too have changed the world
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Revolutionary developments now in everyday use, improving lives of patients.
Technologies too have changed the world
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Computing power and development has turned the future into the present with technologies such as artificial intelligence.
The rapid pace of developments in science and technology overflows into medicine.
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Unbelievable changes are being developed and tested - such as 3D printed body parts, new complex and even remote surgical procedures , gene therapy ,
gut bacteria treatments, cancer immunotherapy, synthetic cells, reprogrammed cells , mitochondrial replacement therapy ................it goes on and on.
If one can dream one can think the future.
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
It all seems possible.
Yet none of these will have occurred without the will to change.
And myalgic encephalomyelitis?
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Well, all of the above have had great effects on society and even people with ME will have benefited from some of these developments.
However, what of the progress in tackling ME itself?
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
For ME the progress has been pitiful - and there is no reason for it - other than a lack of will.
Today is International
World Aids Day
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
The first news story on the disease appeared in May 1981 and AIDS was first clinically reported the following month in the United States [source - 1].
Human immunodeficiency virus (HIV) targets the immune system and weakens people's defense against many infections that people with healthy immune systems can usually fight off.
As the virus destroys and impairs the function of immune cells, infected individuals gradually become immunodeficient. Immune function is typically measured by CD4 cell count.
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
The most advanced stage of HIV infection is acquired immunodeficiency syndrome (AIDS), which can take many years to develop if not treated, depending on the individual.
There is no cure for HIV infection.
However, with increasing access to effective HIV prevention, diagnosis, treatment and care, including for opportunistic infections, HIV infection has become a manageable chronic health condition, enabling people living with HIV to lead long and healthy lives.
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Anti-viral therapy for HIV has transformed the prospects of patients from a fatal to a managed condition.
40 years on and things have changed for those affected by HIV.
A similar critical disease has, over the last 40 years, essentially been ignored.
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
In UK there are estimated to be more than twice the number of people with ME than there are people with HIV.
Yet minimal funding for research has been awarded, no strategy of research has been proposed and governments, healthcare systems and national funding agencies have largely ignored it. There is little infrastructure provided.
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
ME has been left exposed to the same ignorance that accompanied the discovery of HIV.
For HIV dedicated wards were set up.
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Campaigns were created with slogans such as “Don’t die of ignorance”. Funding and research resources were provided.
NIH and the Gates Foundation pledged $200 million focused on developing a global cure for AIDS
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
New impetus for discovery and raised awareness was given when South African President Nelson Mandela’s son died from AIDS in 2005.
And ME?
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where
progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
People with ME and their families are left to wonder if that is what is needed to allow ME to be treated with the same urgency? What sort of society is it where progress can only be galvanised by those with celebrity status?
What role do ministers, civil servants, healthcare officials play?
Who would have thought that forty years would go by and people with ME would still have no specialist services, no treatments, no funding for fundamental biomedical research.
For ME we are still discussing the criteria.
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
We are still discussing the name.
We are still frustrated that there is no adequate research funding or any sense of a strategy and no infrastructure.
We still suffer – at least since the beginning of this decade – of the evil that is the biopsychosocial (BPS) doctrine - now being inflicted on long covid patients.
We should have made far more progress than has been the case in forty years.
Yet ME has failed to achieve the progress that other areas of medicine and science have enjoyed.
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support
policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
ME has been forced into a retarded development due to the malign forces which have kept a few in positions of influence and power in order to support policies which have long been known to be damaging.
Even NICE has now been forced to recognise this - though the damage has been done and change is not going to be made overnight.
Progress with ME will certainly depend on some of the above mentioned developments in science, technology and medicine.
The view regarding HIV for forty years ago had seemed to be as bleak as the moon must have appeared to the crew of Apollo 8.
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Forty years on from the first HIV case it is wonderful that enough progress from research has been made to allow HIV patients to lead normal lives.
Another forty years cannot pass without seeing solutions to ME being realised.
Sources and Further Reading:
Back to our Advent Calendar page
Sources and Further Reading:
Back to our Advent Calendar page
Sources and Further Reading: