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2014

 

APRIL 2014

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IN THIS ISSUE

IFR/UEA Press Releases
BRMEC4 and IIMEC9 Conference Events
Karina Hansen
German TV Programme on Severe ME
Direct Debit Voting Competition
Fundraising Update
IACFSME Conference overview by Anthony Komaroff, MD
Turn The World Blue for ME
'92 in 92' Challenge for Invest in ME
One more IiME supporter becomes a published author

 

MARCH 2014

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IN THIS ISSUE

9th Invest in ME International ME Conference 2014

Conference Agenda

IIMEC9 Conference Events

Biomedical Research Colloquium 4

Funding International Research

Fundraising Update for Our UK Rituximab Clinical Trial

ME Awareness Month
'92 in 92' Challenge for Invest in ME

IiME AWARENESS and FUNDING EVENTS

'92 in 92' Challenge for Invest In Me

Conference Questions

 

FEBRUARY 2014

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IN THIS ISSUE

IIMEC9

BRMEC4

Possibly the 2 Most Important Research Projects for ME in the UK

Rituximab clinical trial for ME

FAQs on the rituximab clinical trial

The Institute of Medicine (IOM) contract -a new ME/CFS definition

FDA "The Voice of the Patient ' document

IACFS/ME Conference

IiME AWARENESS and FUNDING EVENTS

'92 in 92' Challenge for Invest In Me

The Big Sleep

Walk for ME

Bath Marathon

London Marathon

Arctic Marathon

Books on ME - MY A-Z OF M.E. (Myalgic Encephalomyelitis)

Books on ME - Can I Tell you about ME/Chronic Fatigue Syndrome?

Books on ME - Rafi Brown and the Candy Floss Kid

APPG for ME

Films on ME

 

 

2013

 

  
AUGUST 2013
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IN THIS ISSUE

The IiME/UCL UK Rituximab Trial for ME

 

 
JULY 2013
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IN THIS ISSUE

8th Invest in ME International ME/CFS Conference 2013
IIMEC8 Pre-Conference Dinner
IIMEC8 Conference DVD
IiME BRMEC MEETING
A UK RITUXIMAB TRIAL
IiME FOUNDATION PROJECT
SEVERE ME
BIG FINISH PRODUCTIONS
BLUE RIBBON FOR ME
ALL THINGS BEAUTIFUL EVENT
IiME WIN DIRECT DEBIT COMPETITION
CARERS' GROUP
ME CARTOONS

 

 
APRIL 2013
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IN THIS ISSUE

8th Invest in ME International ME/CFS Conference 2013
IiME Meeting with Dr McShane
A Tale of Two Collaboratives
Let's Do It For ME
New IiME Ad in London
ICC Guidelines from IiME
Lili's Story
All Things Beautiful
New Research from Georgetown U.
Catch-up on Newslets
Events for IiME

 

2012

DECEMBER 2012
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IN THIS ISSUE

8th Invest in ME International ME/CFS Conference 2013
Informational Packs
Let's Do It For ME
2013 Calendar
SOBAFF Walk for IiME
EMEA Partition
IiME Ad for ME
ICC Guidelines
Flow Cytometer Appeal
Magical Medicine
Fallout From The PACE Trial
ME Webinar
Norwegian Research into ME
Human Enteroviruses
Apligen Fails to Gain Approval
New Articles

 

MAY 2012
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IN THIS ISSUE

7th Invest in ME International ME/CFS Conference 2012
Conference Agenda
Announcement
Let's Do It For ME - Fundraising for Biomedical Research
ME Awareness Month
ME Information Pack
Professional Conscience
Rituximab Trial
Research into Visual Problems in ME

 

MARCH 2012
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IN THIS ISSUE

7th Invest in ME International ME/CFS Conference 2012
Campaigning for Services
APPG for ME Meetings
Let's Do It For ME - Fundraising for Biomedical Research
Other Fund-Raising Events for Invest in ME
Recent Articles
Lost Voices

 

2011

SEPTEMBER 2011
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IN THIS ISSUE

        6th Invest in ME International ME/CFS Conference 2011
Let's Do It For ME - Fundraising for Biomedical Research
New International Consensus
Conference DVD
Media Hype
It's A Funny Old World
IiME Response to InnovAIT Article
IiME Response to RCPCH
Special Screenings - UK Premiere of Voices from the Shadows
A New Initiative
Burst Our Bubble
Gurli Bagnall

MAY 2011 
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IN THIS ISSUE

        ME Awareness Month 2011
International ME/CFS Conference & other events
Letter to The Lancet
Letter to RCPCH
ME and the Media
"Grey" Information About ME/CFS
Irish Blood Ban

 

MARCH 2011 
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IN THIS ISSUE

        6th IiME International ME Conference - The PACE Busters
Pre-Conference Evening
Australian Symposium
PACE Trials and MRC Funding
NICE Response
NIH Knowledge Committee Workshop
ME Awareness Month

 

January 2011

6th Invest in ME

International ME/CFS Conference 2011

A The Way Forward for ME - A Case for Clinical Trials 

 

 

2010

October 2010 
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Round-Up of Research News
MLV-Related Viruses
A Centre of Excellence for ME
CFS Advisory Committee
Ban on blood donations
 ME Business Studies - 1
ME Business Studies - 2
Knowledge or Belief
Patient Choice
PACE Trials
NICE Guidelines Review
The ME Dilemna
 UK Examination and Research Facility
Fundraising for IiME 6th IiME
International ME Conference 2011

 

August 2010 
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5th IiME International ME Conference Update
Invest in ME & WPI Research
A Centre of Excellence for ME
Fundraising for Invest in ME
CMO reply
BACME
News from European ME Alliance
Links
More XMRV

 

March/April 2010  
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Invest in ME Funds WPI Research
5th IiME International ME Conference Update
Invitation to BMJ
Fundraising for Invest in ME
CFS RF Grant Applications
Magical Medicine
Magical Medicine - PACE Trial Costs
Lightning Process - the Falsehood of Magical Medicine
CMO
Media News
News from European ME Alliance

 

February 2010 
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5th IiME International ME Conference
ME & My MP
ME As NOTIFIABLE ILLNESS Letter to UK CMO
Conference News
XMRV Research
PACE Trials
Fundraising for Invest in ME
Magical Medicine
Magical Medicine in Action
New Head at CDC
Lynn Gilderdale
Lost Voices - New Edition
News from European ME Alliance

 

January 2010

5th Invest in ME

International ME/CFS Conference 2010

A New Era of ME/CFS Research 

 

2009

December 2009 
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5th IiME International ME Conference
ME & My MP
ME As NOTIFIABLE ILLNESS Letter to UK CMO
ME and Secret MRC Files on ME/CFS
PACE Trials
NICE - the Statements That Weren't Seen
A Chance to Help Biomedical Research into ME
Research Papers
Lost Voices
and finally...for Christmas

 

November 2009 
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Our Supporters
5th IiME International ME Conference
ME As NOTIFIABLE ILLNESS – Letter to UK CMO
XMRV Research – A Landmark for ME
And the Parallel Worlds
CFSAC Meeting in Washington
ME Story
CBT and GET
Dr Martin Lerner Statement
Films on ME
ME & My MP

 

October 2009  
The Proof is Out There - Part III
WPI Collaboration
Canadian Guidelines
Martin Lerner - EIPS
Response from CMO
Projects
Petition Against CDC Empiric Criteria
Christmas 2009

 

September 2009  
H1N1 Flu Virus
Conference DVD
IiME ME Information Package
Response to E-Petition to Prime Minister
Response to Letter to CMO
DLA
MRC Finalised Terms of Reference
ME Story
My Sister Sophia - Before ME
Fundraising for ME

 
September Supplement 2009 - Click Here

 

July 2009  

International ME/CFS Conference Postscript
Conference DVDs
European ME Alliance
Enterovirus Foundation
H1N1 Flu Virus
Pace Trials
Response to E-Petition to Prime Minister
Response to Letter to CMO
Fundraising for ME

 

April 2009 

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ME Awareness Month 2009
International ME/CFS Conference
Hillary Johnson
The MRC Panel
ME Story
Forward ME
Norway ME Event
ME Petition
Accounts

 

March 2009 

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International ME/CFS Conference News
Pre-conference presentation - CDC Influence
Conference DVDs
Accountability....again
Petition
"Lost Voices" - International ME Awareness Month
"Lost Voices" - The Book
NICE
Human Rights
New Scientist
ME Story
Research
European ME Alliance

 

February 2009 

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International ME/CFS Conference 2009 News
Hillary Johnson at IiME Conference
Lost Voices update
NICE
A month in the Life of....Calendar of the Chronically Ill
News from WPI

 

January 2009 - IN THIS ISSUE

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Lost Voices
Invest in ME International ME/CFS Conference 2009 News
IiME Medical research Fund
MRC and Biomedical Research
Research News
NICE
Additional News

 

 

2008

December 2008 

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Lynn Gilderdale
Invest in ME International ME/CFS Conference 2009 News
Norway Establishes ME Centre
Dr Martin Lerner's EIPS
Quick Topics
UK MRC Panel
Christmas ideas for ME

 

November 2008 

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Invest in ME International ME/CFS Conference 2009
Lost Voices - the IiME ME Book Project
The European ME Alliance
Recent ME Events

 

October 2008 

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MRC Peer Reviewing System
Sheila's story - status
Caring for Seriously Ill People with ME
Cooperation Between ME Organisations
Journal of IiME

Recent Research

HHV-6 Conference on the Web

"Lost Voices" - the ME Book Project

ME Book - Osler's Web

 

September 2008   

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NICE, Norway and the MRC
Whittemore-Peterson Institute
2008 Conference DVD
New Conference
MRC Statement
RSM - Medicine and ME
ME Stories
ME and Media

 

June/July 2008   

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International ME/CFS Conference Success
2008 Conference DVD
Whittemore-Peterson Institute
Accountability
Thyroid paper from Hyde
"Lost Voices" - the ME Book Project update
Google ME Awareness Day

 

May 2008 - IN THIS ISSUE

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International ME Awareness Month
International ME/CFS Conference 2008
The Whittemore-Peterson institute
The HHV-6 International Symposium  on Viral infections  in CFS
DVD Offer
Short Takes on ME
Journal of IiME
Around Westminster - Questions in Parliament
and what of Sophia?

 

April 2008   

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International ME/CFS Conference
The RSM Conference
Wessely's Way
New RSM Conference
Contradictions of Psychosocial Research World
Parallel Worlds
ME Stories
"Lost Voices" - the ME Book Project

 

March 2008   

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International ME/CFS Conference News
Conference DVDs
ME or Not ME
CAlling London - Survey of Patients
The Invisible Man and ME
"Lost Voices" - the ME Book Project
Parliamentary Questions
ME Petition to the Prime Minister
National Knowledge Week for ME
Professor Basant Puri
Thanks

 

January 2008 Nr 01A   

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International ME/CFS Conference
"Lost Voices" - the ME Book Project
IiME and MHRA
All Party Parliamentary Group on ME/CFS

 

January 2008

 

 

2007

December 2007  

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The International ME/CFS Conference 2008
Invest in ME in your FACE
ME Awareness Month
NICE - Under Review
Norwegian Conference on ME
ME Letter Project
Tissue Bank

ME stories

Education on ME/CFS
Ways to Help at Christmas

 

September 2007   

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Letter from America

ON the Edge:

The Whittemore Peterson Institute for Neuroimmune Diseases

 

 

August 2007   

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Statistics on IB and DLA
NICE Health Select Committee Investigation
Norway - the Breakthrough
ME Dominoes
International ME/CFS Conference DVD
ME Stories
The Journal of IiME

Quotable Quotes Booklet

Canadian Guidelines
ME Clinics

 

May 2007IN THIS ISSUE

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ME Awareness Month
Short Takes
Raising ME Awareness in Spain
Journal of IiME
Quotable Quotes
Conference Review
A Horse Story

 

April 2007  

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ME Awareness Month
Short Takes
Raising ME Awareness in Spain
Journal of IiME
Quotable Quotes
Conference Review
A Horse Story

 

March 2007   

Campaign - ME As a Notifiable Illness
Gibson Inquiry
Meeting Gibson/Hyde
Opportunity for Progress
Nightingale ME Definition
ME Petition
ME Awareness Month
Conference Update
Guest Speaker
ME Story
ME Guest Group

 

January 2007   

ME in 2007
Campaign - ME As a Notifiable Illness
Gibson Inquiry
ME Awareness Month
Conference News
Sophia's Story-Responses
ME Story
Thyroid in ME
A History of ME
2007 Calendar

 

November 2006 IN THIS ISSUE

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Gibson Inquiry
ME Awareness Month
IiME International ME Conference
Sponsor a GP
NICE Guidelines - IiME Response
ME and CMO Response
EveryClick Helps
ME gallery
Have a Cuppa
Young Hearts Day
Sophia - A Year On

 

 


 

 

2006

 

September 2006 IN THIS ISSUE (click here)

ME As a Notifiable Illness at Schools
NHS Direct Encyclopaedia
Saying NO to CBT and GET
ME Conference in JCP
ME Conference DVD for USA/Canada
Sophia's Story Translation
ME Story -1
The ME-baY
ME Story -2
Other ME Groups/Contacts
ME Conference 2007
ME Story - 3 Casey Fero

 

 

 

 

 

 



 

2005

 

December 2005 IN THIS ISSUE (click here)

News of Invest in ME              
Have a Cuppa for ME              
Events for 2006                      
The ME Conference 2006  
ME Awareness Month 2006   
ME and My MP                         
The Gibson Inquiry                 
ME Experiences - Your Story

Professor Malcolm Hooper    

Meridian TV - ME Expose       
Opathy or Apathy                   



 

SPECIALS

NORWAY - the dominoes falling?

Norway - dominoes falling?

Welcome to a Special Invest in ME Newsletter for April 2007.

(click here)

Gibson Inquiry
Gibson Inquiry

Welcome to a Special Invest in ME Newsletter for November 2006.

(click here)

 

NICE Draft Guidelines
NICE Draft Guidelines

Welcome to a Special Invest in ME Newsletter for November 2006.

(click here)