Invest in ME Research
Christmas/New Year Fund Appeal Advent Calendar

Art and ME

Art has the power to inspire, to evoke reflection, to see things differently, to force change.
Sometimes when trying to get a message across then it becomes easier when using art – enabling something unsaid to be understood.

On Day 12 of the advent calendar, and half way through the advent month, art and ME seemed a good way to take a pause at this point – a full stop to reflect – a dot.

One Stupid Dot

It is two years since Stacy Hart's poem One Stupid Dot was included in our Journal of IiMER.

Me and M.E, how can ‘One Stupid Dot’ makes all the difference.

This brilliant, unique poem was recently given a new mode of expression and understanding with this excellent video from What's Up TV.

Matchsticks and ME - the Art of Wolfgang Stiller

Some while ago famous German artist Wolfgang Stiller was approached by Janet Smart to use Wolfgang’s renowned Matchstick art in order to raise awareness of ME.

Janet and the Let’s Do It For ME team came up with slogans for five of Wolfgang’s images.

IiMER then got to work on producing texts around these images and how they relate to ME.

The result was the Matchstick booklets.

These booklets were distributed to many countries and to healthcare staff, hospitals, doctors, universities, politicians and the media.

We are hoping we can produce more when funds permit.

Lost Voices

In 2009 the charity published and distributed the unique book on ME, Lost Voices from a hidden illness, a beautifully designed and compiled book by Natalie Boulton that highlighted the situation of those severely affected by ME and their families.

This book was ordered by patients, support groups, healthcare staff and researchers in twenty countries.

At the end of this article are some of the comments we received from readers of the book.


With social media nowadays prevalent in all campaigns there is rarely a lack of video or film to help get a message across. Yet it may be harder to find examples that also transmit a message in an elegant and considered way.

Invest in ME Research are part of the European ME Alliance and our Swedish colleagues produced a beautifully simple yet effective video about severely affected patients – The Invisible Ones – On Severe ME/CFS

When the media is often just looking for soundbites and superficial headlines then art can help make a difference for educating the public about ME.

Further Reading:

  1. What's Up - One Stupid Dot

  2. Matchsticks and ME

  3. Lost Voices.

  4. The Invisible Ones

Back to our Advent Calendar page

Contact us

Send us an email. Use the form below